Head over to http://www.youtube.com/user/Bazmufc8491/feed?filter=2 later today to check out a summary of “Living with ME” as part of the ME Awareness Week synchroblog, or join in the discussion on yesterday’s video: http://www.youtube.com/watch?v=scaATvr_50o
My last charity for the week is Tymes Trust (http://www.tymestrust.org/), providing some of the hardest and most necessary advocacy, for those with ME who are not able to advocate for themselves. It’s estimated that around 10% of ME sufferers are children, and they face some of the most difficult circumstances as a result of the disease. They are often forced to attend school to the detriment of their health, and can be removed from their families if they fail to show improvement.
Tymes Trust work hard for children and young people with ME, advocating for them and giving advice to families, as well as generally raising awareness. A variety of informational resources are available on their website, and they also provide an advice line for sufferers and parents.
A great part of the problems faced when dealing with institutions is that they are unaware of what ME really is, and so Tymes Trust provide reliable professional advice which can avert disaster borne of misunderstanding. They give much needed help in difficult situations such as schools refusing to provide appropriate education for ill students, or doctors insisting on treating the disease as a mental health disorder.