A Moment for Meso

I first heard about Mesothelioma when I was a child- my parents were talking about someone who had died of a cancer caused by asbestos, and how unfair it was. They explained to us that a long time ago it had been used as a building material, but that they had discovered that even a little exposure to the dust could be deadly so they had stopped using it. That was all I ever knew about it, so I was shocked when I learned recently that although they have known it was dangerous since the 1950s, it wasn’t actually banned until 1999 and it’s still the leading cause of work-related deaths in the UK

Mesothelioma is a cancer of the cells which cover organs, usually those of the lungs. It develops slowly and is often not discovered until the sufferer is already struggling to breathe. Although it can be up to 40 years from exposure time to the patient developing the disease, once diagnosed the average life expectancy is a mere 1 year. It’s incredibly painful and debilitating, but the early signs tend to be subtle and so often missed – weight loss, side pain, shortness of breath, fatigue and a persistent cough.

One of the great battles faced by Mesothelioma sufferers, much like those of ME, is the lack of information available for patients and doctors. Although most people are aware that asbestos is dangerous, very few realise that it was still used as a building material in the UK as late as the 90s. Then there’s the large number of professions exposed to it – from those serving in the armed forces to those washing construction crews’ clothing – most of whom never knew there was any danger at all.

The good news is that there are treatments available, and new research is being carried out all the time – the prognosis nowdays is better than it was even 10 years ago! However, many doctors are still unaware of the latest options, and patients often struggle with understanding the illness and what to do about it. That’s why, as ever, the spread of information is key – and that’s something we can all help with.

We can combat poor poor life expectancy simply by knowing what to look for. Usually the illness is diagnosed very late, but the earlier its caught, the better the chances of survival. You can find out more about the symptoms at www.mesothelioma.com/mesothelioma/symptoms. It’s also a good idea to check whether you or a loved one worked in one of the industries which used asbestos – a list can be found here:/www.mesothelioma.com/asbestos-exposure/occupations.

If you’ve been diagnosed then there’s a wealth of medical and legal help available at websites like www.mesothelioma.com (US) and www.mesothelioma.uk.com (UK) where you can find out about the latest treatment and research options. There are also support groups and helplines available. In the UK you can sign up for clinical trials through the NHS at www.nhs.uk/Conditions/mesothelioma/Pages/clinical-trial.aspx and help researchers improve treatments and quality of life for sufferers everywhere.

Lastly, if you’re thinking of carrying out some DIY or home renovations then find out first whether your home was constructed with asbestos, so you don’t accidentally put yourself and your family at risk.

Like ME, this was a disease I had vaguely heard of but never really knew about, but it’s something many people know all too intimately, and those sufferers need support too. I’m glad I took the time to learn a little more and to share that knowledge. Information empowers us – the more we know, the better we fight!

Disclosure/Movember (NHBPM 4)

My husband is taking part in Movember this year, growing a moustache for men’s cancer awareness. I don’t think he’s ever grown a moustache before- hopefully he will end up dashing and handsome, not slightly creepy. The downside is that I won’t be able to tell if his evil twin abducts him and takes his place.

Unless… growing a moustache is what makes you the evil twin.

Today’s prompt is about disclosure. I’m not so sure that there’s much to say on this point, but I’ll no doubt find much to say about it anyway. At it’s most basic, I choose to write things for one of two reasons: they are either important, or they are funny (sometimes both). That means that sometimes I share a lot about myself, and sometimes hardly anything; sometimes I’ll talk a lot about a something that’s affecting me, and sometimes I won’t share anything at all.

For example, in this picture, I decided not to share a close-up of his nostrils.

I chose to share about Movember, because it’s an important thing – even though it has very little to do with what I usually write about. I’ve yet to share much about the legal battles with DLA, mostly because I’m still processing what’s going on. That’s important too, but maybe it doesn’t have to be talked about just yet.

In general, I prefer talking in the abstract, or taking a piece of life and discussing the wider issues involved with it. It’s more rare for me to talk about what’s currently affecting me at the moment, unless I have some insight or query about it. Usually I’ll think it over first, or only mention something because it needs to be said. If you want an example of the complete opposite approach in health blogging, check out Abigail’s blog on the right-hand menu. The differences might give you an idea of what I mean.

Happy movember. Probably more awkward close-up photos to come!